Expert by Experience Advisory Group
The Expert by Experience Advisory Group aims to achieve active and meaningful public involvement at all stages of the research process, with a common goal of ensuring research quality.
Group members consist of autistic adults, parents, carers and family members of children or adults with autism. They act as critical friends on autism research from their own perspective of living with autism, advising and giving feedback about research via our face to face or virtual group.
For information on how to join the group please contact Professor Emma Gowen.
Face-to-face group for group members
Our face-to face-group meets quarterly and consists of around 15 to 20 group members. Meetings alternate between online and in person format.
As the aim of the group is to get advice from people with a lived experience of autism, group members consist of autistic adults, parents, carers and family members of children or adults with autism.
To become involved, please contact Professor Emma Gowen (emma.gowen@manchester.ac.uk):
Virtual group
Our virtual Expert by Experience group aims to connect the autism community with researchers by sharing information about research projects online.
Members are asked to provide comments on materials that researchers send via a LISTSERVE mailing list.
As the aim of the group is to get advice from people with a lived experience of autism, group members consist of autistic adults, parents, carers and family members of children or adults with autism.
To become involved, please contact Professor Emma Gowen (emma.gowen@manchester.ac.uk)
Expert by Experience Advisory Group for researchers
Have you asked autistic people or their family members what they think about your research?
Do you want your research findings to get to the people that could most benefit?
Have you thought about talking to the Expert by Experience Advisory Group?
What is the group about?
Autistic people, parents and carers of autistic children advise on research projects at all stages of development, using face-to-face or virtual means.
Why should I consult the group?
People living with autism may have insights into your planned research that you may not have considered. Consulting the group could assist with bridging the gap between researcher and subject, improving the relevance, impact and funding success of your research.
The group can also help disseminate your work so it gains wider impact and recruits more participants.
If you would like to find out more contact: Prof Emma Gowen